Ataxia-Telangiectasia is a lethal genetic disease that attacks children. It causes progressive loss of motor skills and predisposes them to cancer and immune system problems. Kids appear healthy at birth. The first symptoms of the disease include poor balance and slurred speech. Most A-T kids are in wheelchairs by age ten and often do not survive their teens. There is no cure and no life prolonging treatment. The disease is estimated to occur 1 in 40-thousand births. Researchers know of roughly 500 cases in the United States, but the numbers indicate there are several thousand more- likely misdiagnosed.
The A-T Children's Project is a non-profit organization that raises funds to support and coordinate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure for Ataxia-Telangiectasia. Advances in A-T research will benefit other diseases such as Cancer and Alzheimer’s.
The A-T CureTour kicks off September 3rd at Disneyland in Anaheim, California and concludes at the New York City Marathon on November 4th. The tour spans more than 12-thousand miles, 30 states, and 40 communities where A-T children live. In many cities, Borland will push A-T kids in the jogging stroller for part of the 26.2 mile route. Other days the stroller will remain empty in memory of a child who has lost the fight.
To learn more about the A-T Children’s Project, go to www.atcp.org
Watch this video to find out more about A-T: